https://brainwave.org.au/blog daily 0.75 2022-08-19 https://brainwave.org.au/blog/september-wellbeing-workshop-for-siblings monthly 0.5 2022-08-19 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/d22e527a-f7b9-4ae8-9edf-57c12c198841/05sep-MindfulKids.png Blog - September Wellbeing Workshop for Siblings - MONDAY 5 SEPTEMBER // 6-6:30pm Our Online September Wellbeing Workshop for Brainwave Siblings is on again. A special workshop, just for our brainwave siblings and led by Mindful Kids Melbourne. https://brainwave.org.au/blog/brainwave-blokes-group monthly 0.5 2021-05-20 https://brainwave.org.au/blog/blog-post-title-one-8s5pb monthly 0.5 2021-05-17 https://brainwave.org.au/blog/blog-post-title-two-8jnk8 monthly 0.5 2021-05-17 https://brainwave.org.au/blog/blog-post-title-three-4p8nd monthly 0.5 2021-05-17 https://brainwave.org.au/blog/blog-post-title-four-z4c2j monthly 0.5 2021-05-17 https://brainwave.org.au/blog/category/Events monthly 0.5 https://brainwave.org.au/blog/category/Brainwave+Families monthly 0.5 https://brainwave.org.au/blog/tag/Online+Webinar monthly 0.5 https://brainwave.org.au/blog/tag/Brainwave+Families monthly 0.5 https://brainwave.org.au/blog/tag/Event monthly 0.5 https://brainwave.org.au/events daily 0.75 2026-04-02 https://brainwave.org.au/events/2026-brainwave-great-gatsby-gala-at-ngv monthly 0.5 2026-03-31 https://brainwave.org.au/events/family-day-april2026-gumbuya-world monthly 0.5 2026-02-12 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1770868456666-MA83941O4OPWXE01MWCM/GUMBUYA+WORLD+-+APR+2026.jpg Events - VIC | Family Day | Gumbuya World - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://brainwave.org.au/events/nsw-family-day-sydney-zoo monthly 0.5 2025-12-22 https://brainwave.org.au/events/nsw-brainwave-christmas-party-zasrk monthly 0.5 2025-11-06 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1762309129906-IQX33O4O0BZB0N1Z3QZJ/Brainwave_Christmas_Party_invitatio.jpg Events - VIC Brainwave Christmas Party - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://brainwave.org.au/events/ride-for-the-kids-2025 monthly 0.5 2025-09-14 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/b1c9c580-effd-44f6-b888-6bbd9741eb7a/RFTK+-+2025+-+Facebook+Header.png Events - Ride for the Kids 2025 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://brainwave.org.au/events/2025-brainwave-fundraising-gala-at-carousel monthly 0.5 2026-03-26 https://brainwave.org.au/events/family-day-july-2025-werribee-zoo monthly 0.5 2025-06-25 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/22f207fd-0a4c-4998-b1ef-9ef0f3c37d2c/WERRIBEE+ZOO+-+16JUL.png Events - Werribee Zoo Family Day - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://brainwave.org.au/events/family-day-myuna-farm-sept-2025 monthly 0.5 2025-09-14 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/d69e4bbc-e63c-4a2e-a6f9-c8028e978f7a/BW+-+EVENTS+-+2025+MyunaFarm.png Events - Myuna Farm Family Day - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://brainwave.org.au/events/family-day-april2025-gumbuya-world monthly 0.5 2025-02-19 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1739942808580-WNY3PSUG8R8LT2KYPY33/GUMBUYA+WORLD+-+APR+2025.png Events - Gumbuya World Family Day - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://brainwave.org.au/events/family-day-april2025-mopa-sandringham monthly 0.5 2025-02-25 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1739941567125-BAK2KGW2VFV2ZNV02CIX/MOPA+-+Arp+2025+-+MELB.png Events - Museum of Play & Art Family Evening - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://brainwave.org.au/events/nsw-brainwave-christmas-party monthly 0.5 2025-11-05 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/779fbf9a-6d4c-4660-8a90-9f09fff574a3/SYDNEY+-+LUNA+PARK+CHRISTMAS+-+30112024.png Events - NSW Brainwave Christmas Party - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://brainwave.org.au/events/2024-brainwave-fundraising-gala-at-carousel monthly 0.5 2025-04-02 https://brainwave.org.au/events/camp-brainwave-2024 monthly 0.5 2024-08-20 https://brainwave.org.au/events/save-the-date-vic-family-day-33wtt monthly 0.5 2024-08-16 https://brainwave.org.au/events/save-the-date-nsw-family-day-e9njp monthly 0.5 2024-08-16 https://brainwave.org.au/events/save-the-date-vic-family-day monthly 0.5 2024-08-15 https://brainwave.org.au/events/save-the-date-nsw-family-day monthly 0.5 2024-08-15 https://brainwave.org.au/events/sydneyfamilyday-april2024 monthly 0.5 2024-04-08 https://brainwave.org.au/events/brisbrainwavefamilyday-april2024 monthly 0.5 2024-04-08 https://brainwave.org.au/events/melbbrainwavefamilyday-april2024 monthly 0.5 2024-04-05 https://brainwave.org.au/events/sydney-christmas-party-2023 monthly 0.5 2023-10-25 https://brainwave.org.au/events/melbourne-christmas-party-2023 monthly 0.5 2023-10-25 https://brainwave.org.au/events/sydneybrainwavefamilydayoct2023 monthly 0.5 2023-09-06 https://brainwave.org.au/events/melbbrainwavefamilydayseptember2023 monthly 0.5 2023-09-06 https://brainwave.org.au/events/kids-sibs-day-nsw-23-july-2023 monthly 0.5 2023-06-01 https://brainwave.org.au/events/melbbrainwavefamilydayjun2023-zwg3a monthly 0.5 2023-05-25 https://brainwave.org.au/events/melbbrainwavefamilydayjun2023 monthly 0.5 2023-05-25 https://brainwave.org.au/events/2023-brainwave-fundraising-gala-at-the-glasshouse monthly 0.5 2024-08-16 https://brainwave.org.au/events/parents-connect-community-group-86r5m-hzk39-ejh9n monthly 0.5 2023-05-15 https://brainwave.org.au/events/parents-connect-community-group monthly 0.5 2023-04-18 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1681788827042-R2RVEWOK1STCVAK5JGZF/BW+APR23+Newsletter+Event+TILES+-+APR+%28570+%C3%97+400+px%29_parent%27s+connect.png Events - Parents Connect Community Group - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://brainwave.org.au/events/source-kids-expo-sydney monthly 0.5 2023-03-18 https://brainwave.org.au/events/sydneybrainwavefamilydayapril2023-4ezl9 monthly 0.5 2023-05-25 https://brainwave.org.au/events/sydney-christmas-party-november-2022 monthly 0.5 2022-10-07 https://brainwave.org.au/events/melbourne-christmas-party-november-2022 monthly 0.5 2022-10-07 https://brainwave.org.au/events/tips-tricks-to-build-an-amazingsupport-team-with-melanie-dimmitt-lowri-williams monthly 0.5 2022-10-07 https://brainwave.org.au/events/brainwave-kids-book-club-october-2022 monthly 0.5 2022-10-07 https://brainwave.org.au/events/mindful-mondays-2022november7-rekgj monthly 0.5 2022-10-07 https://brainwave.org.au/events/back-in-black-2022-fundraising-gala-dinner monthly 0.5 2023-05-15 https://brainwave.org.au/events/brainwave-bikes-grand-opening-17september2022 monthly 0.5 2022-09-11 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/a8b5b048-bc5b-422e-9004-7e5f2f44c1e2/BWBikes_GrandOpening+%28Facebook+Event+Cover%29.png Events - Brainwave Bikes - Grand Opening! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://brainwave.org.au/events/event-one-rryp2-8p8cd-tsec2-xgas7 monthly 0.5 2022-10-07 https://brainwave.org.au/events/event-one-rryp2-8p8cd-tsec2 monthly 0.5 2022-09-11 https://brainwave.org.au/events/event-one-rryp2-8p8cd monthly 0.5 2022-09-11 https://brainwave.org.au/events/sydneybrainwavefamilydayapril2023 monthly 0.5 2023-03-18 https://brainwave.org.au/events/lets-talk-kat-barlow-empowerment-ethos monthly 0.5 2022-10-01 https://brainwave.org.au/events/mindful-mondays-2022october3 monthly 0.5 2022-10-01 https://brainwave.org.au/family-blog daily 0.75 2024-12-12 https://brainwave.org.au/family-blog/holiday-activities-for-brainwave-families monthly 0.5 2024-12-12 https://brainwave.org.au/family-blog/tag/Activities monthly 0.5 https://brainwave.org.au/family-blog/tag/Brainwave+Families monthly 0.5 https://brainwave.org.au/our-team daily 0.75 2025-11-11 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/bfe338e2-99aa-4976-ac56-895b9de75b1c/markhawthorne.jpg Our Team Mark Hawthorne (Chair) https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/5a159490-8074-47f4-92d3-3c594baf2f86/NatashaCarr_BrainwaveBoardMember_Headshot_2.jpg Our Team Natasha Carr https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1733889774767-XHG5RB0HACW201KAFN2H/FionaRusso_HeadshotFEB24.jpg Our Team Dr Fiona Russo https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1733889852011-5HRC2IBEG210GGJ57BOH/PaulDimech.jpg Our Team Paul Dimech https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1733889912143-C28DPU0WX2HY59CRE1KV/Rose.jpg Our Team Rose Donohoe https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/3102b645-67d5-4e0a-a135-fdfa24d3775c/Chemere.Brown-2_WEB.jpg Our Team Chemere Brown https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/d9f85528-5aa1-4248-a8e9-bcc4af266d54/Adam+Willis.jpg Our Team Adam Willis https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1622441889608-NDIF0XV0H92HR89RHKC9/Purple+Squiggle.png Our Team - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1630990720366-H765F414258OI08MA9M6/AVI-Headshots-Paul_76Q3496.jpg https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1616992770087-ICLWTI6BR7SGFM83YKGN/img-p-founder-nic-old-1.jpg Our Team https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1622441743983-TF0LX2NGAOCCY2D0B8NT/img-headshot-klim.jpeg https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/a6740034-5bf9-488d-b28b-48f8b84abf55/1.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/5cbf67ca-c02b-4555-8b6a-b92906c433c1/3.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/80f5ec59-0534-499a-aa0b-ec918726ce54/20190112_dokic-story_89_h.jpg https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/756481cd-132e-410f-9737-612e29759d22/4.png https://brainwave.org.au/home-3 daily 0.75 2025-04-02 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/08fe9856-b02d-4dc5-9370-f00857aa6310/BW+-+Orange+Squiggle+only+-+350pxw.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/08fe9856-b02d-4dc5-9370-f00857aa6310/BW+-+Orange+Squiggle+only+-+350pxw.png https://brainwave.org.au/our-impact-arissa daily 0.75 2021-05-31 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1617685818448-ZPY1QX50D92SO2QR13YC/Arissa-real-story-apr-edition-NL.jpg Our Impact Arissa - Arissa Meet lovely Arissa At 3 years of age, Arissa loves her unicorn toy and has the most fun when she is playing with her siblings and listening to music! Arissa has Ataxic Cerebral Palsy and difficulty with moving and controlling her body. Extremely delayed in all areas of her development, Arissa needs significant assistance and support with all activities of daily living. Arissa’s family applied to Brainwave for a Second Skin Lateral Stability Splint to assist with controlling her ataxia and increasing her stability in all positions. Arissa’s therapist says “The splint has made such a positive difference, and has enabled Arissa to high kneel and move around the couch, and practice walking with her walking frame which she was previously unable to do” Arissa and her family “would like to thank Brainwave and their sponsors for their wonderful support and generosity…. supporting children and their families at an extremely difficult time”. https://brainwave.org.au/support-brainwave daily 0.75 2021-05-31 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1617773553064-4OSVF90VUZ8C19KFJC25/IMG_7532.png Support Brainwave - “I became a Brainwave Buddy so that kids with Brain illness and injury can get more of the support they need.” Brainwave have been supporting kids and families for many years to get the equipment they need every day, and to create fantastic social events where they can get together with other kids and families just like them. I knew those things were so important to kids and I knew that I could do something that would make a difference. Footy takes up a lot of my time so registering to be a Buddy made it easy. – Luke Breust https://brainwave.org.au/our-partners daily 0.75 2025-09-15 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/ca9731f2-e422-4890-a050-bcd4734e0cb8/2.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/17b9de6b-b668-4609-9d03-2ee9d2267cec/Mercedes-Benz_Brainwave+Bikes_067_HR.jpg https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/ed412dba-5a30-4816-be68-17bba532688c/1.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/931a21ce-562f-4aea-8c88-29043d623c98/2.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/9863a56e-f889-4e3a-9469-1d2608cb7207/BWWebsiteAsset+2.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/a7a0e34b-6722-4405-bbce-492b4a9ef03c/3.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/5014842e-017f-4dbe-abfa-0889785e9104/4.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/3a95d0d8-6593-4d43-b235-d959b9332719/KING-Logo-2020_K95+BLACK+1.jpg https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/2f4a8d1b-b3b2-46b3-8848-aea74a03fa5f/Cobranding-primary-black.jpg https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/bfb4af4d-a35d-4106-acf8-b7a4fad36441/7.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1152ffc9-10e8-4bf5-857c-16ad780a6809/5.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/e4921dcc-f4f7-4a59-a110-fb2962480a0a/6.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/11160ee7-d387-4e8a-a21a-4b58a4daf816/99_Bikes_White_BG.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/c04f215a-c021-45cb-aec6-a51e95a6ce87/download+%283%29.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/fa39cc2f-fff4-4c71-bd0b-2f32bd24e325/BOSCH.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/63c889f3-5383-4dd8-8349-c9c4faec73ad/BW+-+Website+Corporate+Partner+-+BBankCDowns+%28400+x+190+px%29.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/655fd2ac-92ba-49a1-829c-3b40a39e6064/BW+-+Logo+-+city+of+kingston_2.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/e8714aca-a682-4531-bb7b-88ba6f771009/MotoroloaSolutions_logo.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/f6967776-7b47-4116-babb-42e61720daff/BW+-+Website+Corporate+Partner+-+logo+updates.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/6bea065c-04dd-4235-95fc-1368bc5a59fe/download.jpeg https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/c696c0ad-a4ae-404c-8c9d-fd7c552bc736/Asset+1Cleanaway.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/c0237d1d-80d6-4b40-8f02-087ff93db13b/wise-logo-higherres.png https://brainwave.org.au/apply-for-funding daily 0.75 2021-09-01 https://brainwave.org.au/registration-form daily 0.75 2023-09-27 https://brainwave.org.au/thanks-and-check daily 0.75 2021-06-03 https://brainwave.org.au/contact daily 0.75 2021-05-18 https://brainwave.org.au/get-in-touch daily 0.75 2022-07-18 https://brainwave.org.au/registration-confirmation daily 0.75 2021-05-16 https://brainwave.org.au/funding-application-confirmation daily 0.75 2021-05-16 https://brainwave.org.au/donate daily 0.75 2022-02-01 https://brainwave.org.au/ou-stories daily 0.75 2025-11-25 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1622442579951-PSDGT7V7TAQB7F5UM7KX/Blue+Squiggle.png https://brainwave.org.au/our-impact-ashton daily 0.75 2021-05-31 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1617687179467-WSMG8R7UQ2A2PI7IMDGD/Article06_Ashton.jpg Our Impact Ashton - Ashton Ashton is six years old and is a special part of this family from rural Victoria which includes Sarah and her husband Justin and their younger daughter Lyla who is age three. Ashton was born eight weeks premature after a very turbulent pregnancy. At five days old it was discovered during a routine brain ultrasound that Ashton had a rare brain abnormality called partial agenesis of the corpus callosum. The doctors were unable to tell Sarah and Justin what exactly this would mean for Ashton, they just had to wait and see how he would develop. The first few years consisted of many hospital admissions and visits to specialists to treat different illnesses and the epilepsy he has developed due to his diagnosis. There have been a lot of unknowns and so much time and energy has been invested in helping Ashton to develop through different therapies which has also meant that Sarah has had to stop working. This has had a big impact on their family financially, emotionally and socially. Sarah says “Going out can be difficult due to the amount of equipment needed for Ashton which in turn makes it hard to maintain friendships”. Despite his challenges and requiring assistance with all tasks from eating, to communicating, to dressing, he has learned to walk with the assistance of his walking frame. “Ashton is amazing – he now thoroughly enjoys going to school and horse riding” says Sarah. By chance, Ashton’s mum stumbled upon Brainwave late last year and she says “we will forever be grateful for the assistance they have provided us in being able to purchase a swivel based car seat. There is minimal funding available for pieces like this making it extremely difficult to be able to purchase on one income. This year I have hurt my back lifting Ashton into and out of the car, making this item a necessity. This specialised seat ensures that Ashton can travel safely in the car and I can save my back by helping him to climb into the seat instead of lifting him. It has made a huge difference to our family, we can’t possibly say thank you enough for the support you have given us. Once again a big thank you for making our lives just that little bit easier”. Brainwave support many families in need of financial assistance through the purchase of necessary equipment and therapies that will enable children with neurological conditions to thrive in their communities. https://brainwave.org.au/home-copy-in-case-for-bottom-sections daily 0.75 2025-04-02 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1616994700580-DI4MANXCVRHJNCR5JUVY/Logo+and+bw.png Home (Copy) in case for bottom sections Making each day a better day for children living with brain illness or injury https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1617761466609-JBJSLY6PAC42O557HCJD/myu.png Home (Copy) in case for bottom sections - Providing care and support when families need it most Brainwave offers a number of programs, financial aid, therapies and equipment to positively impact the lives of children with brain injury and illness. We support children at all stages of their journey. https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1617771069923-JZ2PMD8HD2NNCOPGYMFE/resizedImage+%283%29.png Home (Copy) in case for bottom sections https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1617761254804-WWZKVLY5795U7GN7FEWC/resizedImage+%284%29.png Home (Copy) in case for bottom sections https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1617761271817-5SJ0VEEVE0TI6NEFXEXZ/resizedImage+%285%29.png Home (Copy) in case for bottom sections https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1617681916622-4FF9B0ZE5SSO773YMW5A/Luca-287x300.png Home (Copy) in case for bottom sections - Our Families Over the last 25 years, we have touched many children's lives by providing essential equipment. Wheelchairs, feeding devices, head support collars, walking frames, and bath aides are just some of the items that we have supplied to Brainwave families. https://brainwave.org.au/get-involved daily 0.75 2025-12-24 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1641865727466-XDOD9QERN5IC3AO9U0F4/IMG_7532.jpg Get Involved https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1f9a2894-ddaa-4237-9dfa-f951ef39b733/Provide+essentials1.jpg Get Involved https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/7854de5b-8107-4066-bc8f-67e093f514e6/IMG_8515.jpg Get Involved https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/2edec0d7-6069-4a4b-a432-46eaaae4d5d7/IMG_8958RR.jpg Get Involved https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/9b537123-7265-452e-9e87-7b0f11f6ac50/DSC08442.jpg Get Involved https://brainwave.org.au/our-impact-mia daily 0.75 2021-06-03 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1622685396376-I34I6Y2YS3DTFSLIU8ZG/image003.jpeg Our Impact Mia - Mia Mia is one of our gorgeous Brainwave kids! She is an affectionate and cuddly little lady with a great love of music. Mia suffered severe brain damage at birth and has cerebral palsy, vision impairment, slight hearing loss, epilepsy, and difficulty with temperature regulation. Mia is unable to walk or talk and requires a feeding tube. Despite facing these challenges, Mia has a megawatt smile and lights up any room. She is a delightful little girl treasured by her family and friends. Mia’s family approached Brainwave for funding assistance as part of the Equipment and Therapies Program. Mia needed an essential piece of equipment, a head support collar. Mia has poor head control, and the support collar helps her maintain a better posture allowing for easier breathing by ensuring her airways remain open. Mia’s family were grateful for Brainwave’s support, “We would like to say a huge thanks to everyone involved with the funding and the program to help people in our situation.” We are thrilled to have assisted Mia, and on behalf of our Brainwave community, we would like to extend our sincerest thanks to our partners and supporters for their ongoing commitment to our organisation. Our work wouldn’t be possible without your generosity. https://brainwave.org.au/our-impact-marta daily 0.75 2021-06-03 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1622685602349-AOEDCVO5WSE6IS3G2H4J/IMG_9505-768x1024.jpeg Our Impact Marta - Marta Marta is a sweet little girl 9 year old with cerebral palsy, intractable epilepsy, and is legally blind. Her giggles bring joy to everyone around her. She enjoys listening to orchestral music, bird songs, and reading bedtime stories with her older brother. To control her epilepsy and decrease the frequency of life threatening seizures, and the need to attend the emergency department, Marta is restricted to a special nutrition diet called KetoCal, which is prohibitively expensive. Together with her rehabilitation team, Marta’s parents reached out to Brainwave. Through our Essential Equipment and Therapy funding program, Brainwave has made it possible for Marta to continue with her ketogenic regime and keep her epilepsy under control. The family would have a major difficulty purchasing KetoCal in the months ahead if not for Brainwave’s support. Marta’s parents said “As parents, we have our child’s best interests at heart, and it is difficult to realize that, despite our best efforts, we cannot provide our daughter with everything she needs at this time. This makes us deeply thankful for Brainwave’s support of our family and other families like ours.” https://brainwave.org.au/our-impact-xavier daily 0.75 2021-06-03 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1622685902075-UDPE0Y4OPNK9WW1KCR5T/Xavier-Bramley-ebike-768x1024.jpeg Our Impact Xavier - Xavier Xavier had a tough start right from birth. By the age of 10, it was clear that he required several more pieces of equipment to maximise his skills and provide independence and improved quality of life. His Gran, together with his medical team reached out to Brainwave for a tricycle to assist his physical skills, coordination, range of movement, and strength. From Xavier’s Gran “Thank you for the e-bike. Since getting the e-bike Xavier can ride a little longer before having a rest. It has made a dramatic change to be able to ride a longer distance each time. The biggest change I have noticed is his independence and I am proud of the progress that Xavier has been making and its making a big difference to our family. Thanks so much” https://brainwave.org.au/our-impact-annelise daily 0.75 2021-06-03 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1622686081820-HA3NTDHWAWHAW55SIZ73/Annalise-Buda-10th-Birthday_-2020.jpeg Our Impact Annelise - Annelise There is no doubt that some birthday celebrations may look very different in 2020, but Brainwave are happy to be sharing these special occasions with you all in some way. Meet Annelise, who has been connected with Brainwave for some years. We were so touched to receive this message from her Mum. “Hi Brainwave team, Thank you for Annelise’s birthday card. Today is a birthday like no other. Annelise has turned 10 years old. This time last week we were waiting for our gorgeous girl to come out of an 8.5 hour spinal surgery. The past week has been the toughest of our lives. We are grateful for all the love and support we have received as it helps us through each and every day. Annelise usually has loads of birthday cards sent to her but I guess due to Covid restrictions it was difficult this year. Annelise only received a card from Brainwave so my heartfelt thanks to Suzy, Amy, Greg, Fiona and Liz.” We send out birthday cards to all our amazing children. We are thinking of you, and very much look forward to seeing you again soon. In the meantime, don’t forget to follow us on socials and look out for your name on your birthday month, maybe send us a photo with your card-we would love to see your smiling faces! https://brainwave.org.au/our-impact-lexi daily 0.75 2021-06-03 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1622686313890-01SKS6XZ8SRCDLVNIAOY/200_MC40423_Xmas19_HiRes.jpeg Our Impact Lexi - Lexi Lexi is one of our beautiful Brainwave kids. She has quadriplegic cerebral palsy with mixed spasticity and dystonia and complex communication needs. Lexi’s family approached Brainwave as she needed a manual wheelchair. Lexi had outgrown her wheelchair, and she required one in the next size. “Without a new chair, Lexi would experience significant discomfort and pain, and her ability to learn at school, engage with peers, and participate in the community would be limited. The manual wheelchair that Brainwave provided has been hugely beneficial to Lexi’s school life.” We are thrilled to have helped Lexi and her family! Thanks again to our partners and supporters – our work wouldn’t be possible without you! https://brainwave.org.au/our-impact-cornelius daily 0.75 2021-06-03 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1622686434664-X74F6I4DU8CGU5MYS5Z5/Cornelius-Yalamu-Feeding-Device-300x225.jpeg Our Impact Cornelius - Cornelius Cornelius is a happy and social 13-year-old who enjoys spending time with his siblings and friends. He was diagnosed with Cerebral Palsy at birth, and his hands are unsteady, meaning he is unable to feed himself or perform other tasks. Cornelius has a keen interest in creative pursuits and uses his left foot to draw. He also uses his foot to navigate a keyboard and mouse when using Adobe’s Illustrator and Photoshop programs to create designs and edit photographs. Cornelius’ parents approached Brainwave to request an Obi Robotic Feeding Device (Neater Eater). They felt that the device would benefit the entire family by improving mealtimes, Cornelius would have more independence, and his mum would be able to eat dinner with the rest of the family instead of feeding her son as was usually the case. Cornelius’ family were thrilled to receive Brainwave’s support, “Thank you. By providing assistance to a child, hope is given, and children are motivated to excel.” We are delighted to have made a positive impact on their lives. Thank you to our partners and supporters, together we can continue to make a real difference. https://brainwave.org.au/our-impact-rafeal daily 0.75 2021-06-03 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1622686636958-3GN45VX9AJNPN7HYNO6W/Rafael-Image-2.jpeg Our Impact Rafael - Rafael Rafael is 3 years old and was born 9 weeks premature with cerebral palsy as a result of a twin to twin transfusion. Rafael needs assistance with all his movements. Rafael’s favourite movie is Cars and he loves Lightening McQueen. He enjoys a chat and laugh with everyone. Rafael’s mother Jessica said “In an ideal world, we would love to see that Rafael is not limited by his disability, but is able to do anything and everything that his brothers do. We want him to have a fulfilling childhood and enjoy all the things that little kids enjoy and not feel limited.” In 2017, Jessica applied for funding. She wanted Rafael to have a modified tricycle, so he could engage more with his family including his twin brother. It would also help him to build strength resulting in more control of his body. A modified trike with postural support that can be adjusted with age, would allow Rafael to ride like other children. It would also allow his parents to move him around easily while outdoors. An equipment and therapies campaign was recently held to raise funds for the children Brainwave support. We were over the moon when a wonderful donor purchased a modified trike for Rafael. The photo of Rafael’s happiness say it all. One of Rafael’s biggest challenge is outdoor mobility but now his mother Jessica said, “From the moment Rafael rode his bike for the first time, we haven’t been able to wipe the smile off his face”. She also said “it has been wonderful for us to watch him join in riding bikes with his brothers. Our most heart-warming thanks to Brainwave Australia and the generous, kind hearted person that bought this trike for Rafael. It has made him so happy and brought him and our family so much joy!” https://brainwave.org.au/our-impact-april daily 0.75 2021-06-03 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1622686928725-OSE67VSAAR6J2KXDINQ9/April-Image-1-2.jpeg Our Impact April - April Meet our friend April. April is a funny and cheeky 9 year old girl who loves to dance! She often tries to get her family and school teachers to dance with her too! She has great fun watching herself dance in front of a mirror as she watches The Wiggles, and also loves Irish dancing and ballet. April loves to help her dad cook! She excitedly dons her chef’s apron and sets about chopping and mixing ingredients to create a culinary delight! April lives at home with her 15 year old brother, her Mum and Dad, as well as two crazy funny cats! When April was 19 months old she was diagnosed with autism and severe developmental delay. April is largely non-verbal and her lack of effective communication and impaired cognitive function leads to tantrums. She has many sensory and behavioural issues that are extremely distressing to both April and her family. Dealing with these issues can be socially isolating. Brainwave has helped to reduce this isolation. April and her family have attended a family day at the Enchanted Adventure Garden in Arthurs Seat as well as Kids in Motion during the school holidays. Kathryn, April’s mother describes this experience, “It’s been wonderful to be with other families and their children and to be able to have fun with them in a non-judgemental atmosphere. Everyone is dealing with their own difficulties and can empathise with one another. It really helps to feel that you’re not alone.” April’s parents also applied to Brainwave for speech therapy funding to assist April’s speech development. Kathryn describes, “This has seen April’s speech improve from being able to say just one word, to two and three-word phrases. She is starting to speak spontaneously now without constant prompting. This may not seem like much, but it’s a huge improvement and milestone and is very encouraging for us as a family.” April and her family would like to thank Brainwave and their sponsors for their wonderful support. https://brainwave.org.au/our-impact-roy daily 0.75 2021-06-03 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1622687109148-Z3NCEZQWKMM463E2U0MT/DSC_7684-300x199.jpeg Our Impact Roy - Roy Roy is an active ten year old boy from Melbourne, with a noisy four year old brother and baby sister. He loves playing cricket and footy and thinks everyone else should too according to mum Tina. When Roy was four months old he was diagnosed with infantile spasms; a rare debilitating form of epilepsy. Medications could not control his seizures and at the age of two he underwent massive brain surgery. Sadly, after a few years his seizures returned and at seven he needed more surgery. As a consequence, therapy has been a large part of Roy’s life, helping him with social skills and through physiotherapy and occupational therapy (OT) enabling him to integrate within the school setting and his community. Brainwave supported Roy by funding six months of OT after his operation. According to Tina, “it was a huge burden from our shoulders, as therapy is so vital for Roy’s development but is also costly.” “A challenge for us is that unlike a broken leg or arm, which is an obvious sign that someone may need assistance, having a brain injury is concealed and thus people’s expectations of Roy can be much higher.” “Roy is a very kind-hearted, gentle boy by nature and understands that he can only do his best. He is a trouper and will have a go at new things.” Roy and his family have benefitted from attending Brainwave family events. According to Tina, “We’ve enjoyed some fantastic family adventures with Brainwave which are great for the health of our family! Luna Park, ice skating and Werribee Zoo. Even a home visit from Santa Laurence!” “When your family is struggling emotionally and there is no-one else in your situation that you can talk to, having an organisation like Brainwave is a great support.” According to General Manager Caroline Scully, “Brainwave’s programs reflect the need for ongoing support for children and their families both physically, socially and mentally and what is rewarding is knowing our contribution, whilst small, has made a positive difference in the life of the child and their family.” https://brainwave.org.au/our-impact-jackson daily 0.75 2021-06-03 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1622687571195-ZUOF39G83BZ86D35POYD/Article-2-Jackson.jpeg Our Impact Jackson - Jackson Jackson is 16 years old and is the second oldest of four children. He lives with his mum, dad, siblings and two best friends; Chester his Labrador and Odeon the family’s German Shepherd. According to mum, Maree, “life was good until Jackson showed no signs of weight bearing and could only sit. They always say that a mum knows best and I had this gut feeling that something was not quite right even though our doctor said his motor skills were just delayed.” As time went by, and with no signs of improvement, the medical tests began. In February 2002, the Ingall family were given the life changing news that Jackson has a genetic disease called spinal muscular atrophy (SMA) type 2. SMA is a childhood form of motor neurone disease. The family were told that Jackson would never walk, will endure respiratory complications and muscle wastage throughout his life and that there was no known cure. Maree says, “Jackson has never let SMA stand in the way of living the best life he can and we never wanted him to feel any different to other children growing up. Where there is a will, there is a way and Jackson has proved this to everyone who knows him. He attended childcare and main stream Primary School, has travelled overseas, plays wheelchair sports and has the ability to embrace life with passion and enthusiasm.” There have been many admissions to hospital including one stay of 8 weeks in ICU as a result of complications from spinal surgery to correct the severe scoliosis he suffers. Maree says, “Jackson is writing medical history as he has been knocking on heaven’s door many times but continues to bounce back.” Today Jackson attends a school that can take care of his medical and academic needs. Unfortunately as Jackson has grown, his scoliosis has worsened. Brainwave helped Jackson by funding modifications to his wheelchair that provide him with a specially designed backrest moulded to fit his spine. According to Maree, “without this help Jackson would be bed-ridden and his quality of life would have suffered enormously.” Maree says, “there are no words that can describe how grateful we are to Brainwave, who have come to the rescue of our family and others like us. Things like modifications, are a huge expense and now with the new back on Jackson’s wheelchair, he continues to live life to the full. Thank you to Brainwave and the generous people that support it.” https://brainwave.org.au/our-impact-dylan daily 0.75 2021-06-03 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1622687671926-XO2AYE9HZRR29YESXVN4/Dylan-web.jpeg Our Impact Dylan - Dylan Dylan is one of our wonderful Brainwave kids. He was diagnosed with hypotonic cerebral palsy, autism and a hearing impairment at two years old. Dylan loves big open spaces, trees and beaches. He has a passion for trains, planes and all things Dr Seuss. Due to his cerebral palsy, Dylan tires very quickly and he requires a disability pram. He has no understanding of road safety so having a suitable pram is crucial. Dylan’s family were using the disability pram obtained when he was a pre-schooler, however, at 8 years of age, Dylan had outgrown his chair. The wait for a new NDIS approved chair was 12 months, and in the interim Dylan’s family had to make do without transport. With the assistance of their medical team, the family approached Brainwave to fund a new disability pram for Dylan. Dylan’s pram has made a big impact on his everyday life, he is now able to join his family on a range of expeditions. He loves nature and now thanks to his new wheels he can explore the outdoors! “Funding means we can go out again as a family which means the world to us! We are now able to take Dylan out and about for family bush walks or even just a simple trip to Woollies. From all of our family we would like to say thank you so much for this gift. It has been life changing for everyone, most of all his little sister who so enjoys having big brother Dylan with her on family trips and walks.” Zoe, mother of Dylan – aged 8 https://brainwave.org.au/our-impact-naomi daily 0.75 2021-06-03 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1622687832664-3L2RVUUO18889M0877BB/Naomi-Philpot.jpeg Our Impact Naomi - Naomi Naomi is an adventurous and happy 8 year old girl from country Victoria. Naomi’s mother registered her with Brainwave in 2014 when she was diagnosed with a brain tumour. Naomi has been able to join in the fun at some of Brainwave’s social events including our Victorian Christmas Party at Luna Park and our 2017 Family Day at Werribee Open Range Zoo. Brainwave received a funding request for Naomi for a specialised bike, so that Naomi could enjoy physical activity and ride her bike, just like her younger brother. Anna, Naomi’s mother has given us a snapshot of the emotional hardship they face day to day, and how, just a small amount of help can bring such happiness to Naomi’s world. “I have been meaning to send a card and photo to express our sincere thanks and gratitude for Brainwave’s generosity to fund Naomi’s bike. Naomi was so delighted when the bike arrived as she was just out of hospital after pneumonia. Unfortunately less than a week later she was admitted at the RCH for pancreatitis for 9 days. Within less than 3 weeks she was airlifted to the RCH from Warrnambool hospital for acute illness for a month’s stay in hospital and Melbourne. Currently she’s admitted again to the Warrnambool hospital after only 2 weeks at home. In which time she was able to ride her bike once which brought her so much joy. The bike has made a wonderful difference to her. It has also encouraged her physical activity after being so de-conditioned in hospital for over 3 months now. She has had 4 brain surgeries and 2 years of chemotherapy. Being on steroids and trauma to her hypothalamus from the brain surgeries / tumour increased her weight to an abnormal level. Last year when her younger brother with Down syndrome started to be able to ride a bike with training wheels it reignited her desire to ride again. But this goal was delayed due to financial restrictions and challenges of finding a bike that would suit her. Your generosity has made Naomi’s dream of feeling “free” on wheels come true! For this we are so grateful and would like to express our sincere thanks to Brainwave and your generous donors for making this happen for Naomi.” Anna, Naomi’s Mother. https://brainwave.org.au/privacy-policy daily 0.75 2022-02-28 https://brainwave.org.au/our-impact-alyssa daily 0.75 2021-06-08 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1623111744199-UM7OD584U8UM8NOO7J91/BW_3.2.jpg Our Impact Alyssa https://brainwave.org.au/our-impact-jack daily 0.75 2021-06-08 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1623114913990-MLXIR39TWNTAJFWOIMPK/Jack-Paterson-169x300.jpeg Our Impact Jack - Jack This is Jack. Jack was born with a rare genetic condition called Sotos Syndrome. This causes physical overgrowth during the first years of life and often means delayed motor, cognitive and social development, low muscle tone and impaired speech. Initially, Jack relied on a frame for mobility. These days he can walk and run thanks to the intensive efforts of his parents and his big sister, five years his senior. Jack attends school, which he absolutely loves. Jack’s mum is a nurse, which has been a huge help to the family in understanding Jack’s condition and managing his care. “Being a nurse has given me flexibility when it comes to Jack’s care and support,” she says. She is also a big rap for Chelsea’s efforts on her little brother’s behalf. “Chelsea is fantastic and a great support,” she says. Joining Brainwave has given the family additional help, which proved especially useful when Jack’s dad was between jobs. “When things are tough you really appreciate free activities like Brainwave camps,” Jack’s mum says. “They mean a lot to the whole family.” https://brainwave.org.au/our-impact-connor daily 0.75 2021-06-08 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1623113300084-KTXM8N7YMJ95PE6ZID3Z/FB_20151015_19_59_23_Saved_Picture.jpeg Our Impact connor - Connor Connor is 11 years old and his favourite past time is watching the Collingwood football team play and listening to African drumming music. Connor has cerebral palsy. Connor has never walked, crawled or rolled. His condition renders him housebound most of the time and he requires constant care and supervision. Connors condition has had a big impact on his family. Brainwave has helped to fund a gravity chair which will means Connor can sit comfortably at home. His mum Andrea is really pleased that Connor no longer needs to spend his days harnessed in his wheel chair or lying on the floor. We are really happy about this too. Brainwave funds equipment and therapies to improve the quality of life for children living with a neurological conditions. Connor is pretty happy that he can now sit and watch his favourite footy team in the comfort of his chair along with his siblings. Let’s change another life. Donate to Brainwave today. https://brainwave.org.au/our-impact-austin daily 0.75 2021-06-08 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1623115280942-0SCYP8EM5T36KOICOWRU/photo-austin-759x1024.jpeg Our Impact Austin - Austin Austin aged 2 years was diagnosed with Merosin Deficient Congenital Muscular Dystrophy at the age of one. This condition causes hypotonia (decreased muscle tone, floppiness) and reduced movements and contractures in the hips, knees and elbows. Austin requires full support in all positions and is totally dependent on his parents for all his mobility and daily care. One of Brainwave’s core programs is helping to improve the quality of life of children such as Austin through funding equipment and therapies that will help the child participate fully in community life. In Austin’s case, this included being able to undertake approximately 6 months of hydrotherapy which as the testimony indicates Austin loves and values. Brainwave is essentially about helping children not only survive; but to thrive. “Austin absolutely loves being in the water! It’s a real joy to go to the pool every week and know we will be well supported. Austin loves it when people at the pool come over to talk to him and now that we are there regularly lots of people are getting to know him. Thank you again for your generosity – it has made a great difference to Austin’s life.” https://brainwave.org.au/our-impact-mia-1 daily 0.75 2021-06-08 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1623115680671-90XBAVY6BDVJ1L6MAK79/Mia_photo.jpeg Our Impact Mia - Mia Mia has been a friend of Brainwave for three years. We first came to know Mia when she was 12 months old—Mia had been diagnosed with Krabbe Disease, an extremely rare and fatal degenerative neurological condition that affects the myelin sheath of the nervous system. There are two known cases in Australia. In 2014, Brainwave was able to fund a baby carrier, car seat and pram for Mia. It felt great to be able to provide practical support at the time and much happiness has been derived by our team knowing this basic equipment was making life a little easier for Mia and her family. Sadly, this year, Mia, her baby sister Emily, mum Donna and dad Matthew were unable to join us at Luna Park for our Christmas party. Laurence, our Programs Manager drove to Mia’s house to hand-deliver gifts just in time for Christmas. What Laurence found in the room that day was a beautiful, fragile and gentle soul, a kindred spirit in Emily and a room filled with love and determination. It is difficult to imagine how it would feel watching your child live with a degenerative condition. However, to see how loved Mia is by her family and how positive they are about her determination is inspirational. Donna says, “it is Mia’s strong will to live that has her beating all the odds”. Every day we meet children and families who inspire us personally and professionally. We are very honoured to know Mia and her family and wish them all the very best this Christmas. https://brainwave.org.au/our-impact-luca daily 0.75 2021-06-08 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1623115795174-654H8985CCBXFJ4T8Q6D/Luca-287x300.png Our Impact Luca - Luca Four-year-old Luca is one of the family. At six months of age, Luca endured a seizure that lasted for over an hour. In the following 12 months, Luca continued to experience prolonged seizures, resulting in a number of admissions to Intensive Care. Eventually diagnosed with Dravet Syndrome, a rare but severe form of epilepsy, he was also diagnosed with developmental delay at two as a result of his condition. Luca’s family was introduced to Brainwave just under a year ago, having been given a Brainwave care pack during yet another hospital admission. Undergoing speech therapy, he was diagnosed with dyspraxia – a condition that affects motor planning, memory and the ability to form sounds and words – and it became clear that long term speech therapy was required. This is where Brainwave was able to help, providing funding for ongoing therapy to help Luca along. His progress has been phenomenal, with Luca recently being able to say his own name and his sister’s name, out loud and proud! Brainwave’s continued help has been a gift to Luca and his family and Luca’s hard work and determination a testament to this family’s commitment to his success. https://brainwave.org.au/our-impact-thomas daily 0.75 2021-06-08 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1623116030025-UM5Z3Y0J5W64SEPOA9W5/Thomas-Brainwave-576x1024.jpeg Our Impact Thomas - Thomas 12-year-old Thomas is social, lovable and energetic. He is always happy and smiling and never fails to brighten up his family’s day. Thomas loves being kept busy with playgrounds and swimming, amusement parks and when time and finances permit, Thomas loves a holiday. Thomas has a pet cat ‘Ollie’ who he adores and according to mum Angie, there might be a little too much love, with Ollie receiving endless cuddles from Thomas. Thomas lives with an undiagnosed neurological condition along with ataxia and communication difficulties. His condition causes him to lose full control of his movements. He can walk but gets easily knocked over. According to mum, “Thomas tries really hard to communicate. He uses pictures to help him along with words. He is progressing but at times can be difficult to understand. He communicates a lot with eye contact and facial expressions and is trying to use his words more each day.” Brainwave has helped fund speech therapy sessions for Thomas to help make his speech more audible. Progress takes time but Thomas is doing really well. With this assistance via Brainwave’s Equipment and Therapies Program, Thomas is able to communicate more clearly with his family, friends and peers. According to Programs Manager Laurence, “it is important to realise that neurological conditions impact a range of body systems and parts and include symptoms that take time to recover from. When I see a child who has undergone therapy six months down the track and witness the improvements they have made, it makes what we do all the more worthwhile”. With ongoing assistance from its supporters, Brainwave will be able to help more children like Thomas. https://brainwave.org.au/our-impact-sebastian daily 0.75 2021-06-08 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1623117189222-O8NP2KI82KYWG11PNDZ9/Screen+Shot+2021-06-08+at+11.52.56+am.png Our Impact Sebastian - Sebastian Sebastian had just started his first year of primary school. Having been a socially reserved child in kinder, we saw Seb grow in confidence with his peers and with the older children at school. He excelled academically, enjoyed PE and playing with friends. Sebastian at Day Oncology with Mr Jingles, Dec 2013 In 2013, after a period of ill health and weeks of tests and investigations, Seb was diagnosed with cancer in his brain and spine. (Disseminated Leptiomeningel Medullablastoma) It is difficult to quantify how tremendously a cancer diagnosis can impact so many lives. For Sebastian, it was the battle for his life, which he fought with an immense amount of courage and resilience. He missed almost a year of school, endured both radio and chemo therapies, several brain surgeries, tests, scans and procedures too numerous to recount. Sebastian lost his appetite for food and has relied on a PEG formula feed for almost a year. Due to long periods of hospitalisation and ill health he lost muscle mass from lack of movement and fatigued quickly. We/he came to rely on the use of a wheelchair for about 10 months. Brainwave were fantastic to provide support to our family at this time by funding the hire of a wheelchair for Seb. His physiotherapist and occupational therapist at RCH, together with Brainwave, organised the chair and associated costs. They took the stress of this additional expense off our shoulders, which really helped considering the limit of family income while caring for a sick child. Brainwave also provided a fun day during the school holidays, which Sebastian was able to attend with his sister. This was a wonderfully organised, entertaining and engaging experience for both the kids. It was a great opportunity to meet other children and families who have had similar experiences. Seb and Leila are looking forward to attending the next fun day! https://brainwave.org.au/our-impact-destiny daily 0.75 2021-06-08 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1623118077758-39S2VQJNS8LTTRKFD7OF/Destiny-02-300x200.jpeg Our Impact Destiny - Destiny and Family Destiny’s early years were a blur of doctors, medical diagnoses and hospital stays. Her mum was 22 weeks pregnant when she learned Destiny had Down Syndrome. Her daughter had a massive stroke at birth and developed major heart problems, necessitating a seven-month stay in the Royal Women’s Hospital’s Special Care Unit. Just a few months later Destiny was diagnosed with two types of epilepsy. A bout of pneumonia and bronchitis saw her hospitalised for two years, at which point she was also diagnosed with cerebral palsy. Destiny’s parents and six siblings have pulled together to care for their precious girl around the clock. Destiny is wheelchair-bound, unable to talk, eats via a feeding tube and needs to remain close to power and hospital at all times. As a result, the family has have been forced to move house, change schools and limit outings to powered, wheelchair accessible venues close to medical help. Marika and Wayne admit the impact on family life has been pretty profound. “We can’t go camping anymore, or even to the local pool,” Marika says. “Destiny needs constant care.” Brainwave’s free, regular family outings have proved to be a godsend. “We joined Brainwave in 2013 and we all look forward to the break from doctors, hospitals and just thinking about everything,” Marika says. “It’s great for the kids to enjoy some special time of their own and let off steam with other kids. It’s great for us as parents, too. Getting involved with Brainwave has been a real privilege.” https://brainwave.org.au/our-impact-chandelle daily 0.75 2021-06-08 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1623119637901-ZQC2GHV4HQADQL1DHHMA/YMCA-Camp-18th-Oct-2014-154-200x300.jpeg Our Impact Chandelle - Chandelle and Family When the parents of Chandelle were told she had a rare form of ‘fluid on the brain’, she was one month old. She underwent multiple surgeries and developed postoperative meningitis. At five months of age, Chandelle was diagnosed with cerebral palsy, most likely the result of brain damage caused by her conditions. Just after Chandelle’s first birthday she experienced her first seizure and subdural haemorrhage. These have recurred regularly ever since. By the age of 10 Chandelle had developed epilepsy, anaphylaxis, urticaria, dermographism and osteoporosis (the latter causing 14 broken bones in just one two-year period). At last count she had been admitted to hospital more than 100 times. Chandelle’s spirit is indomitable, according to her proud parents. “Chandelle is a gorgeous girl, she’s into everything – craft, drawing, colouring-in, dancing and basketball. She tries her hardest at everything and refuses to let her conditions get her down.” https://brainwave.org.au/our-impact-max daily 0.75 2021-06-08 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1623119787173-BNP6CVSP5O739GJ76A7O/Max-02-300x200.jpeg Our Impact Max - Max Max was born with Ohtahara Syndrome, a severe form of epilepsy that causes continuous infantile spasms. He was diagnosed at one month of age, when his older brother was three. Max’s parents were told that without surgery Max’s life expectancy would be very short. Max underwent surgery at 10 weeks of age in an attempt to halt the seizures by effectively disconnecting the left and right sides of his brain. At six months of age surgeons operated again, and Max and his family enjoyed three seizure-free years before his problems recurred. MRIs in recent years have pinpointed further areas of abnormality in Max’s brain, which will require further surgery. Max’s epilepsy has left him intellectually delayed, unable to speak, and weak on the right side of his body. It has done nothing to dent his enthusiasm for fun, however. Max’s parents say both Max and his brother throw themselves into all kinds of regular activities with the boundless energy you’d expect of young kids. “Max is a curious boy and a beautiful, gentle spirit,” says Stuart. “He loves music, swinging and jumping on the trampoline.” Max and his brother are regulars at Brainwave events. In 2014 alone Max attended his third Brainwave camp – which he adored – and threw himself into everything else on offer too: the Kids n Sibs holiday program, Healesville Sanctuary family day, and Luna Park Christmas party. “You name it, Max and his brother were into it,” Stuart says. https://brainwave.org.au/our-impact-lucy daily 0.75 2021-06-08 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1623119887660-5MGP3JYZ19PEGO7JGDNG/IMG_6152-web.jpeg Our Impact Lucy - Lucy Three-year-old Lucy loves to be part of the family action and keeping up with her four older siblings is her top priority. When Lucy was three days old her mum and dad started to get clues that she had some health issues. At first, she was diagnosed with a hole in the heart, then she had some seizures and at four months old it became obvious she was not keeping up with developmental milestones. At 10 months Lucy was diagnosed with Cerebral Palsy. Lucy’s mum Kylie said, “It was a difficult time for our family as we were trying to manage our three older kids while also attending to Lucy’s medical needs. We spent, and continue to spend, an enormous amount of time and energy attempting to create a family environment where Lucy and her siblings can all share in each other’s fun.” In her first three years of life, Lucy experienced heart failure, seizures, fractures, operations, a multitude of invasive tests and investigations, plus lengthy hospital stays and more medical appointments than you can count. She attends weekly physiotherapy, speech, occupational and hydrotherapy, along with other allied health and medical appointments. Brainwave funded a slide, swing and supportive seat that has enabled Lucy to be included in family fun. According to Kylie, the play equipment is used almost every day. Going to the park can be difficult so having this equipment at home is helpful. The Go-to-Seat for Lucy has made travel easier. Recently the family took it on a trip to Inverloch which made it easier for Lucy and her family. Lucy is progressing well and is doing her best to keep up with her siblings and friends. Kylie says, “As a family, we are constantly amazed and inspired by Lucy’s strength and determination – she will give anything a go!” According to Brainwave General Manager, Caroline Scully, “one of Brainwave’s core values is inclusion. Having the right equipment is often key to families being able to get out and about and to have full participation within the community. This funding has allowed Lucy and her family to spend time together and has gone some way to improving Lucy’s quality of life. This is what Brainwave is all about – we love this”. According to Kylie, over the last year, Lucy and the family have really enjoyed their involvement with Brainwave. They appreciate the funding support and the sense of community that Brainwave provides. Kylie said, “we hope that with the support of family, friends and organisations like Brainwave, Lucy will be able to do more of the things our other children do so easily. https://brainwave.org.au/our-impact-ruby-rose daily 0.75 2021-06-08 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1623120009439-1IUKO39O6WG627X51IPQ/RealStory_RubyRose.jpeg Our Impact Ruby Rose - Ruby-Rose Ruby has a rare neurological disorder called Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) that was triggered by mild pneumonia she suffered shortly before her 5th birthday. In 2008 Ruby went from being a perfectly healthy five-year-old girl, to gravely ill within a matter of six months. Her immune system was attacking the peripheral nerves in her body. This process rendered Ruby unable to walk, she had difficulty using her hands, swallowing, she suffered severe pain, bladder and kidney problems and finally, the nerves were damaged controlling her vocal cords and she was left with a life-threatening condition called vocal cord palsy. As many parents will testify, it is a very dark and lonely place you go to when your child is suffering. It is truly unbearable. The stress of having a sick child is difficult enough without the compounding factors of little family and financial support. Ruby’s family is originally from England and have no family in Australia. Ruby’s parents both work for themselves and when she was in hospital for eight months, Ruby’s mum was unable to work at all and her dad had to scale back his hours dramatically to be with her too. Eventually, Ruby’s mum was forced to sell her business, sadly at a considerable financial loss and during the time it took to sell, it was losing money each week. It was the hardest time of their lives and the added stress of having to stay positive and happy was pushing them to breaking point. It took eight months, but finally, Ruby’s condition was diagnosed. She was incredibly lucky, it was a treatable disease. Ruby’s wonderful doctor, Dr Richard Webster advised that he would start treatment, but not to expect too much. She received her first dose of IVIG, had a severe reaction which was awful and treatment had to stop. However, after sleeping off the morphine, Ruby woke at 11 pm and asked her mother for a drink. She wanted to go with mum to the kitchen so Jane turned to get her wheelchair. When she turned around, Ruby was standing beside her bed with a big grin on her face. She told mum she didn’t need her wheelchair anymore and proceeded to wobble down the corridor bouncing off the walls to the kitchen. “We were both laughing and crying, the nurses joined in walking up and down the corridor – it was a WONDERFUL moment, one I’ll never forget”, says Jane. Despite this dramatic response to the IVIG its effects were short-lived and Jane and Scott knew Ruby had a long fight ahead of her. She has continued to go into Westmead Children’s Hospital every three weeks for the last eight years, receiving blood products from generous donors. Jane and Scott are eternally grateful to these people for their compassion and kindness. Ruby’s disease is a relapsing disease, which makes her grab life with both hands during the periods of wellness. She loves to sew, dance and swim and thanks to Brainwave has enjoyed swimming lessons for the last 6 months. The swimming lessons are invaluable for Ruby, they are helping to strengthen damaged muscles and to give her back her confidence. When Ruby was asked about her swimming progress she said, “It feels nice. I love being in the water and I feel proud that I can swim. Thank you Brainwave for paying for my swimming lessons. I love them”. https://brainwave.org.au/our-impact-lucy-1 daily 0.75 2021-06-08 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1623120157382-C3E864O23D9HFBVY9HHP/Lucy-Brainwave-Featherdale-WL-Park-11-200x300.jpeg Our Impact Lucy - Lucy As a baby Lucy suffered from infantile spasms – a form of epilepsy that was never cured despite repeated treatment attempts. She also developed a severe intellectual disability, the cause of which has continued to elude her doctors. “Every time Lucy woke she would go through a cluster of spasms, up to 30 in a row,” Lucy’s mum recalls. “In 2008 the spasms began to change and became ‘drop attacks’, meaning she loses consciousness and her body crumbles to the ground, which can be extremely dangerous, especially if she is around hard objects. They can happen at any time without warning, and they sometimes leave her incoherent for hours afterward. We tried various medication, surgery and an epilepsy diet and it’s always is the same story – things improve for a while before the epilepsy returns.” Lucy’s developmental milestones were also delayed, and assessments undertaken every few years have confirmed she continues to slip further behind. Lucy’s troubles have had a devastating impact on the whole family. “Lucy is mostly a happy child, but she has some behavioural issues,” Lucy’s mum says. “It can be very hard to function as a normal family would. Imagine living with a toddler in the body of an older child, who is starting to go through the emotional and hormonal changes of an older child.” Through Brainwave the family have developed a network of friends who understand their situation. “With the support of wonderful organisations like Brainwave, we do get to enjoy a few fun family activities together, such as the annual family camp, Luna Park Christmas Party and family fun day at Featherdale Wildlife Park,” Lucy’s mum says. “It’s lovely to spend time with people who have an idea of what we’re going through.” https://brainwave.org.au/our-impact-brodie daily 0.75 2021-06-08 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1623120344690-WG4H3K6TCJW5QQ8J48M5/MCW6043_1_web.jpeg Our Impact Brodie - Brodie Brodie is five years old and he has a complex, undiagnosed neurometabolic disorder, rendering him physically and intellectually disabled. Born with the incredibly rare disorder, Brodie is part of a worldwide research project to find the gene responsible. The symptoms of this complex disorder includes non-verbal, life-threatening seizures and completely unexplained hypoglycaemia—making observation of Brodie a full time and vital undertaking. Brodie and his family – mum Deanne, dad Sean and brother Kye have embraced the Brainwave family and were very willing guests at Camp Jungai in October, held north of Melbourne in the spectacular Rubicon Valley. As Mum Deanne explains, this camp provided enormous joy and some respite for Brodie and his loving family: “Camp Jungai was only the third time in five years that we have been away as a family. Generally, it’s just too hard and we are all exhausted by the weekend. However, Camp Jungai provided a fun and supportive weekend away and we jumped at the opportunity. When we arrived at the camp we were taken by its stunning location and scenery. The facilities were lovely and instantly, we were welcomed as members of the Brainwave family. The warm welcome certainly set the tone for the weekend ahead. We went for it! We did canoeing, high ropes, went on a photo rally and attended the Indigenous cultural session and so much more! Brodie enjoyed the splash in the water and was excited to be lifted off the ground in the ropes. Such a delight to see him smile. And Brodie’s brother Kye was embraced by the group and received some much wanted attention that he craves, needs and desires. To have a weekend away with other families just like us is priceless. We don’t have to explain anything, the support for each other is just there. The highlight of the weekend is seeing the smiles, giggles and genuine joy on our children’s faces. Just like all children, this is what they deserve. Our life is filled with a roundabout of hospital visits and doctor’s appointments, which is no fun for any child or sibling. Camp Jungai allowed us to forget all of that for a weekend, breathe in the fresh air and enjoy all the Camp had to offer. Thanks Brainwave, it was amazing!” Read more about how Brainwave supports families with equipment here https://brainwave.org.au/teamgallery daily 0.75 2021-07-29 https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1589847724850-FYI688E7RFA1N0CE7B8X/20140301_Trade-151_0124-copy.jpg teamGallery https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1589847724619-GAL4W20L9NFR7FFFXEYZ/20140228_Trade+151_0046.jpg teamGallery https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1589847724396-60W5NRCRMJ7W1T7S4TLL/Aro+Ha_0428_portrait_.jpg teamGallery https://images.squarespace-cdn.com/content/v1/5ec321c2af33de48734cc929/1589847724127-6PC2T6AIGXZD85I7CFS3/Aro+Ha_0010.jpg teamGallery https://brainwave.org.au/our-strategy daily 0.75 2021-09-07 https://brainwave.org.au/our-impact daily 0.75 2025-11-07 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/2eb5d3b7-5d8c-458b-b3dc-23e025987db4/Screenshot+2025-11-07+125334.png 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https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/30b2b8f2-a966-4516-9081-737afe5474fd/Asset+11Brand+graphics.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1aafa005-d762-4a3e-b3a6-14dc2b043b14/1.png https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/53c85dcb-bf85-4680-a8ba-0b55ef74ec3c/Asset+7Brand+graphics.png https://brainwave.org.au/how-we-can-help daily 0.75 2026-03-27 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/7e8a5685-dd6d-4f49-a8ff-a5bc4f601cfa/In-hospital+support.jpg How We Can Help You https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/28d1c2e5-622f-4a2a-aa89-7f33ec687b02/IMG_8177.jpeg How We Can Help You https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/c4630319-b776-4bc9-a848-39f79d1bdd4f/IMG_9038.jpg How We Can Help You https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/b3fda5c1-0d17-4c64-93f2-66c7cd6d0af3/BW2403-CAMP-036+%282%29.jpg How We Can Help You https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/354135c2-9373-4dce-8660-a4cb3238352c/BrainWave-109.jpg How We Can Help You https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/3fe48b43-3d4e-4205-bc74-3c9485089573/BW2405+XMAS-008+%282%29.jpg How We Can Help You https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1617153410002-HZKXCWLSZL636L6W7G1J/MCW0557_HiRes-uai-720x540.jpeg How We Can Help You - Kids and Sibs Kids and Sibs is a popular Brainwave school holiday program. This unique event provides an opportunity for inclusive play between Brainwave children and their siblings. Kids and Sibs is an action-packed session where children of all abilities can bounce, climb, and swing in a safe and supported space. The event encourages children to develop new friendships and draw inspiration from one another. Kids and Sibs is a hugely successful program and a favourite for many of our Brainwave families. https://brainwave.org.au/how-we-can-help/equipment-and-therapies-program-w3g8y monthly 0.5 2026-03-27 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1622436329743-9QVFBWEDVWA6JLK01IKD/2895.jpg https://brainwave.org.au/how-we-can-help/bear-essential-packs monthly 0.5 2025-12-16 https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/ac04f48d-bbf3-46da-86aa-e715e22b7116/Bear+essentials+image.jpg https://images.squarespace-cdn.com/content/v1/606148dcc156763faf05e65a/1d74583f-122a-4d3d-9df7-8c621fdc15f7/Logos.jpg