Luca

Luca and his Dad at Camp Brainwave

Luca and his Dad at Camp Brainwave

Four year old Luca is one of the family.  At six months of age, Luca endured a seizure that lasted for over an hour.  In the following 12 months, Luca continued to experience prolonged seizures, resulting in a number of admissions to Intensive Care.  Eventually diagnosed with Dravet Syndrome, a rare but severe form of epilepsy, he was also diagnosed with developmental delay at two as a result of his condition.

Luca’s family was introduced to Brainwave just under a year ago, having been given a Brainwave care pack during yet another hospital admission.  Undergoing speech therapy, he was diagnosed with dyspraxia – a condition that affects motor planning, memory and the ability to form sounds and words – and it became clear that long term speech therapy was required.  This is where Brainwave was able to help, providing funding for ongoing therapy to help Luca along.

His progress has been phenomenal, with Luca recently being able to say his own name and his sister’s name, out loud and proud!  Brainwave’s continued help has been a gift to Luca and his family and Luca’s hard work and determination a testament to this family’s commitment to his success.