Austin aged 2 years was diagnosed with Merosin Deficient Congenital Muscular Dystrophy at the age of one. This condition causes hypotonia (decreased muscle tone, floppiness) and reduced movements and contractures in the hips, knees and elbows. Austin requires full support in all positions and is totally dependent on his parents for all his mobility and daily care.
One of Brainwave’s core programs is helping to improve the quality of life of children such as Austin through funding equipment and therapies that will help the child participate fully in community life. In Austin’s case, this included being able to undertake approximately 6 months of hydrotherapy which as the testimony indicates Austin loves and values. Brainwave is essentially about helping children not only survive; but to thrive.
“Austin absolutely loves being in the water! It’s a real joy to go to the pool every week and know we will be well supported. Austin loves it when people at the pool come over to talk to him and now that we are there regularly lots of people are getting to know him. Thank you again for your generosity – it has made a great difference to Austin’s life.”