Meet Carys. A witty, kind and loving little seven-year-old
who needs your help.
In early January, Carys was diagnosed with a rare and aggressive form of brain cancer known as Diffuse Intrinsic Pontine Glioma (DIPG). DIPG is inoperable and there is no cure. Carys was immediately put on a course of daily radiotherapy treatments, which ends in early March 2017. Like any family finding themselves in this heartbreaking position, we are praying for a miracle.
Jack Bradshaw, Carys’ father
One of the major obstacles to the effective treatment of DIPG is the blood brain barrier, which prevents the free passage of drugs from the bloodstream into the brain. To date, there’s no evidence traditional intravenous chemotherapy has shown any benefit to those with DIPG. Now hope has come from a ground-breaking DIPG research trial in the UK which is aiming to lead the world in using a neurosurgical method of direct drug delivery to the brain called Convection Enhanced Deliver (CED). Carys has been accepted into the trial in London, which is scheduled to begin in April 2017.
We are urgently seeking donations to help fund Carys’ treatment, which will include CED brain surgery and ongoing treatments.
This DIPG CED drug research trial is vital for Carys and will have lasting benefits for all children with DIPG now and in the future.
Brainwave is a QBE Foundation charity partner.
Current funds raised
Brainwave supports children living with a neurological condition by providing the support they need to improve their quality of life. A neurological condition can include brain cancer, autism, muscular dystrophy, stroke, childhood MS and acquired brain injuries. Brainwave helps children with rehabilitation therapies, mobility equipment and free family days that promote social inclusion and connectedness. Brainwave strives to make a positive difference to the lives of the children it supports.