Media release - Laughter, the best medicine

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wallen-family

Chelsea (11), Bailey (9), Campbell (8), Beau (6), Bonnie (3) and Chase (3)

It might have just looked like a bunch of kids jumping on trampolines and climbing walls, but at Kids in Motion sports centre in Port Melbourne on Friday 12 April, some important psychological bridges were built - especially for Wallan’s very own Fowler family.

With six kids under the age of 11 - including three year old twin Bonnie, who has impaired vision and delayed motor skills after complications at birth - mum Katia made the trip to Melbourne Friday morning for a very special day.

The Fun Day, organised by Brainwave, was a rare time for children living with brain illnesses and injuries to laugh and have fun in one of Melbourne’s most exciting indoor play centres.

The free day of fun paid special attention to the siblings of brain affected kids and provided an outlet for these kids to play and laugh together.

According to child psychologist Sandy Rea, some of our most long lasting childhood memories are made through play and laughter. 

“Play can heal emotional wounds suffered by both the able child and the child with the illness. It can help to heal resentments, disagreements and hurts. It relieves stress, fostering flexibility and helping children to adapt and solve problems. Allowing siblings the freedom to play together increases their understanding of each other’s emotions, thoughts, intentions and beliefs and it is a powerful time to transform and manage any negative emotions that siblings may have developed between each other,” Sandy explained.

Katia Fowler said the day was a once in a lifetime opportunity for three year old Bonnie to experience such an amazing play centre and laugh and play with her siblings.

“It was so wonderful to see all the kids playing together like that. We would never normally be able to go to such an incredible play centre,” said Katia. “And to make it an even more memorable day it was Bonnie’s big sister Chelsea’s 11th birthday!”

Spokesperson and founder of Brainwave, Jo Nicholls says that for some of these families, such days are the only fun outings they experience.

“For financial and logistical reasons many families of special needs kids just can’t access a wonderful play centre such as Kids in Motion,” said Jo.

“That’s where Brainwave can help by covering the cost of the day as well as assisting with the logistics of transport but most importantly, Brainwave connects families and pulls people facing similar challenges together to share their stories and provide much needed support.”

Activities included rock climbing, trampolines, climbing ropes, swinging rings, basketball hoops and many other fun things. Mercedes Benz, a proud supporter of Brainwave supplied 11 employee volunteers.

Brainwave holds regular family Care Program events throughout the year including camps, trips to the zoo and Christmas parties.  All activities are supervised by Brainwave volunteers and professional trainers.  And in this instance, parents can take some much needed time off, maybe just to have a quiet cup of coffee in nearby Port Melbourne - for some a rare treat.

Fowler family: Chelsea (11), Bailey (9), Campbell (8), Beau (6), Bonnie (3) and Chase (3).

Kids & Siblings School Holidays event

Brainwave held its inaugural Kids & Siblings School Holidays event on Friday 12 April at Kids In Motion. Situated in Port Melbourne, Kids in Motion is a purpose-built kids gym with great activities such as trampolines, a rock climbing wall, rings and ropes. Entertainers from Circus Trick Tease and Magician - Anthony De Masi were also on hand to provide a fun and memorable event.The event was a wonderful success with forty children aged 2-17 attending, including twenty parents.

The Kids & Siblings event was developed specifically for the children with the brain illness to have a fun outing with their siblings, where they can step out of their comfort zones and try new things. The event also gave parents the chance to take a break, or to remain at the venue to observe the activities. Experienced trainers, plus Brainwave volunteers, were all on hand to run the program and provide support with the children where needed. Feedback received from parents has been very positive which reaffirms  the great benefits events such as this provide. (See below for just a small sample of testimonials.)

We want to thank the volunteers from Mercedes-Benz Australia/Pacific who did a fantastic job in helping us run our inaugural Kids & Siblings School Holiday event. Their enthusiasm and professionalism was exemplary and we are grateful for their support.

Also a big thank you to the staff and trainers from Kids In Motion for helping us run such a successful event.

I would like to thank everyone at Brainwave, all the volunteer,  and the staff from Kids in Motion. The kids absolutely loved the activities and the staff and volunteers interacted so well with all of them. They have been talking about what a great time they had and have told all their friends about it. All the activities were achievable for all the kids and really boosted their confidence. The looks on their faces at the end of the day was priceless. They had grins from ear to ear and talked about what they had been able to do all the way home. Thanks again for another great day!!! SS

Hamish and I both had a ball last Friday. Especially Hamish, if the flapping and happy squeals were anything to go by! Brilliant venue and certainly not something I would have thought of doing with Hamish. Loved seeing him dangling from the rock climbing wall. Was wonderful to catch up with some familiar faces as well. KG

 Dear Brainwave,

Thank you, thank you, thank you from my whole family. The kids had an awesome time and all the staff and volunteers were wonderful. Thank you for these opportunities. Without these events we would not get to try all these activities.  The kids also loved their lunch and have not stopped talking about the day. Thank you . CR

Camp Brainwave, Yarramundi NSW, 22-24 March

Our recently held Camp Brainwave was a great success! Held over the weekend at camp Yarramudi NSW, the event was a real positive experience for families, volunteers and camp organisers. The children’s happy faces were the real highlight of the camp, as was seeing the parents catch up with old friends and make new ones. Once again we must thank the fantastic volunteers from Ferrero who were a great source of help and support.

To Brainwave, Ferrero and the YMCA staff for a great and wonderful weekend at camp Yarramundi. You are all amazing people and the time and support you put into the kids is just wonderful. Thanks so much for a great weekend. Love CF

The camp was absolutely fabulous! The YMCA staff and Ferrero volunteers have beautiful souls. God bless Brainwave. M family

It was great to spend time with other families who have children with similar needs/experiences. My family especially loved the reptile show and spending time with the YMCA leaders and volunteers form Brainwave. Mc family

Pictured below: Getting up close and personal with pythons from Reptiles Rules; All harnessed up for the giant swing. Group shot of our families and volunteers. More photos coming soon!

Fundraising News

We are thrilled to be starting the year in a great position with recent funding received from the Collier Charitable Fund, the Flora & Frank Leith Charitable Trust, and the Pierce Armstrong FoundationFunds received will go towards running our Care Programs.

 

A big thank you to the above foundations for their generous donation and support.  

Brainwave’s Christmas wrap-up!

Melbourne families enjoyed a great outing and fun-filled day at Luna Park, on Sunday 2 December. Over 400 people joined in the day’s festivities, including free rides, entertainment, a visit from Santa, plus lots of give-aways.   

Brainwave’s Chairman, David Blackley, extended a warm welcome to all, while Junior Ambassador Tiffany Wasnig, handed out Brainwave-branded balloons. Children were also treated to a climb on board a Daimler truck (parked out front by Principal Partner, Mercedes-Benz Australia), and allowed to pull the air horn. Something simple, but still a treat!

The Luna Park Christmas party is an annual highlight on Brainwave’s care programs calendar. This event provides a fun outing for the whole family - something which many cannot afford.  

More and more families are participating in the Care Programs throughout the year, ensuring there are lots of familiar faces by the time the Luna Park Christmas parties come up in each state. It’s always lovely seeing people catch up with others they had met at previous events - usually at Camp Brainwave.

What a terrific way to end Brainwave’s annual Care Programs!

These events would not be possible without the support from our partners and sponsors. We would like to thank Mercedes-Benz Australia, Ferrero, Streets, Coca-Cola and Luna Park.  Also, a big thank you to our volunteers from Mercedes-Benz Australia, Mills Oakley and Allens.

“Thank you so much for such a wonderful day yesterday. To give my kids a free day at Luna Park is something I can’t afford to do, so thank you, thank you!” C Family

“My boys had a blast at Luna Park. Thank you Meg and Brainwave! This was a highlight for my family.” K family

“Thank you for a fantastic day at Luna Park on Sunday!” R family

Volunteer’s testimonial: 

“It was incredibly rewarding to see first-hand how Brainwave provides a connection and support for families who constantly deal with the stress and reality of living with a brain illness or injury.  To see the glowing faces of the children as they spotted Santa, face painters, balloons, elves on stilts and other kids they could relate to, was a nice reminder of just how important it is to give back to your community.” Stephanie Wood, Mercedes-Benz Australia

 

Brainwave inspires young leaders at Melbourne Grammar

On Thursday 22 November, Brainwave Australia presented to a room full of interested and enthusiastic students at Melbourne Grammar’s Year 5 Leadership Conference.

Caroline Scully, Director - Strategic Marketing & Partnerships, provided an overview of Brainwave before introducing the charity’s Junior Ambassador, Tiffany Wasnig, who shared her personal story. Tiff suffered from a brain illness as a baby and had to endure numerous operations and interventions. She explained how this  impacted her life, such as having a brain shunt, but also gave an inspiring overview of her accomplishments, including being Junior Ambassador for Brainwave, hoping to inspire future leaders.

A big thank you to Melbourne Grammar for inviting Brainwave Australia to participate at this conference.

tiff-with-brainwave-t-shirt

Brainwave's Junior Ambassador, Tiffany Wasnig

Christmas cheer at Luna Park

Brainwave’s Sydney families enjoyed a fun outing and Christmas party at Luna Park, on Saturday 24th November. The gorgeous sunny weather ensured a great turnout of over 280 families who travelled from all around New South Wales to attend the event - an annual highlight for many.

After a warm welcome in the club house by Chairman David Blackley, children eagerly called out for Santa to arrive and give out their gifts. It was such a treat seeing the children’s happy faces as they moved from one fun activity to the other, including face-painting, balloon art, and of course Santa! Families also had time to bond with new and old friends, some of which had just met at the recent camp, before everyone was free to roam the park grounds and enjoy an afternoon of free rides.

We want to thank Ferrero Australia for their support of the event through provision of staff who volunteered on the day, for attendance of their new CEO, Daniele Bondi’ and his wife Mariolina, and for the donation of chocolate Santas. We also want to thank our ex-Chairman, Alex Lopez who attended with his wife Mary-Ann, and provided some support.

Now, we are busily finalising details for the Melbourne Christmas party, to be held on the 2nd December at Luna Park Melbourne!

ferrero

Thank you Ferrero for your support

Open Garden day raises over $1,650 for Brainwave!

A big “thank you” to the Keft family for opening their beautiful cottage garden in Moruya NSW, on the 17 November, to raise funds for Brainwave Australia.

The mild, spring weather inspired over 100 people to attend and enjoy a lovely stroll amongst roses, salvias and other fragrant plants. Visitors were also provided a delicious afternoon tea, plus a chance to win great prizes at the raffle draw. (Food, beverages and prizes all donated by local businesses). Funds were further raised through the sale of propagated plants, prepared by avid gardener, Liz. 

The response from the community was extremely positive as they were delighted to help support such a worthy cause. The event was a huge success, raising $1,651.95 for Brainwave Australia, tripling the original target of $500!  

The Keft family were inspired to organise this fundraiser as their own son Liam suffered from a brain illness several years ago. Thankfully, he is now doing well and enjoying life as a healthy teenager.

Our deepest appreciation to Liz, Andrew, Avalon and Liam Keft for their generous support of Brainwave Australia! Stories such as theirs are very inspiring and encourage us to continue with our support of families dealing with paediatric brain illness. The money they have raised  will go towards funding special equipment or home modifications for a family whose child has a brain illness.

Pictured below on right: the Keft Family (from left: Avalon, Andrew, Liz and Liam)

If this story has inspired you to become a community fundraiser and help support Brainwave Australia, then please contact us on 1300 766 819 or email admin@brainwave.org.au

Family fun at Camp Brainwave NSW

We are thrilled with the great success of Camp Brainwave NSW, recently held between 9-11 November in camp Yarramundi! Fifteen families and nine volunteers participated in a fun-filled weekend amidst a leafy and peaceful bush setting. Thankfully the precarious spring weather held up ensuring plenty of time for outdoor activities including the flying fox, giant swing, archery, campfire, and even some swimming in the pool…brr..!

Camp Brainwave is all about connecting families who are dealing with paediatric brain illness; ”family” and not the illness is the focus of the camp. This camp was certainly no exception.  It was lovely seeing the children (those with the brain illness plus their siblings) make new friends and also be challenged to try new things. Feedback received from their parents was also very positive, with highlights being the chance to meet others who are dealing with similar issues, plus seeing their children smile.

We keep saying it after every event, but we couldn’t have run this camp without the amazing help of our wonderful volunteers. In particular, we would like to thank the staff from Ferrero Australia who went above and beyond their call of duty. Their enthusiasm, commitment, professionalism and support was exemplary and very much appreciated.

Thanks also to the YMCA staff at camp Yarramundi who were fantastic and helped make this camp a success. The chef also needs a mention as the meals were absolutely delicious!

Camp Brainwave has been so successful that we are planning on running two camps in Yarramundi in 2013. More details coming soon on our events calendar.

This was a great opportunity to meet other parents and chat and share our concerns and ideas. It was also great to see the smiles on all the kids’ faces. Thank you to all staff, YMCA and all the team at Brainwave. M family.

The camp was wonderful. The kids enjoyed their stay at Yarramundi. We all had a fantastic time. We will definitely be coming back next year. Thank you Brainwave Australia! M family.

The camp was very good and the people were all friendly and helpful. It was a good break and the kids enjoyed it a lot. We were able to meet new families and enjoy a new experience. J family

ferrero

Thank you Ferrero for your support

It was smiles all round at Camp Brainwave

Camp Brainwave is all about connecting families, a time to relax,  and fun for the kids. Between Friday 26-Sunday 28 October, fourteen Victorian families experienced just that.

 

Held at the picturesque Camp Manyung on coastal Mt Eliza, Camp Brainwave provided a weekend of fun, interactive, and inclusive activities - such as the flying fox, giant swing and archery. Initially, heavy rain on Friday brought on some concerns, but this soon cleared up by the following afternoon, even inspiring some to take a swim in the sea!  The fresh air and sunshine was such a treat, as were the smiles on the children’s faces while they played in the sand or frolicked in the rock pools. 

 

By Saturday night many were exhausted and tucked in early, while others attended the customary “camp fire”, indulging in gooey, toasted marshmallows, playing games and sharing stories. By Sunday, the weather was truly glorious, ensuring the outdoor activities were once again in full swing.   Thanks to our wonderful volunteers, parents were also provided some precious respite, giving them time to relax and chat with others, knowing that their children were safe and supported. 

 

Sadly, all good things must come to an end, and by Sunday afternoon there was a bevy of packing, hugs, waves of goodbye and promises to keep in touch, as families drove off from another successful Brainwave family camp.

 

A big thank you to all our fantastic volunteers from Mercedes-Benz Australia, our community volunteers, plus the YMCA staff for all their help and support during the camp.  Also, our gratitude goes to photographer Patrick Redmond for generously donating his time and for taking some great photos at the camp. Also, Stephanie from Mercedes-Benz Australia who also took some great pics. A sample of these can be found below. Families who would like copies of their photos can contact us at the Brainwave office on Ph: 1300 766 819.

 

We found the camp to be excellent. The staff, volunteers, programs, facilities, and other families were all outstanding. We have met so many wonderful people. The  highlight for us was connecting with other families who have similar issues in a warm and welcoming environment. B. Family

 

It is not easy looking after a child with a special needs and these camps are sensational. Thank you Brainwave! Our highlight was meeting other families in a similar situation to ourselves in a very supportive environment. R. Family

 

I loved  talking and relaxing with volunteers and other families. Being able to relax knowing that the boys were safe and someone is around, so we can turn off for 5 mins was great. C. Family

 

I loved having time out and meeting and talking to others. Meeting new families and catching up with families we met at previous camps and events was a real highlight for us. W. Family